Justins at UVA

Yep, just an update for Jackies readers…Justin is currently at UVA, he was at RMH last night but they transported him to a larger and better hospital because RMH didnt have the resources necessary to deal with the problems Justin was having.

Heres all the Facebook posts straight from her wall, including her comments and everything else since she left, its a lot better to just post what she said rather then trying to explain it all:

– I will, I’m just sitting here watching his hands, they turn grey then back to normal and he just cries like he’s in pain, won’t nurse, don’t want the paci. He’s pale now…Jeffery just woke up so we’re heading out as soon as everyone gets dressed. I’ll pick up Jeff on the way from work (he gets off in 50min).

– His oxygen is 95% and that’s just barely good. He’s still only 10lbs we’re in the waiting room….waiting. they are packed tonight.

–Been waiting for 2 hours and there is still 5 ahead of him!!

– Going on 3hours and there are 3 people infront of him now….grrrrr! Good news is they checked his oxygen again and its 100%

– Update: they are transporting him (and me lol) to UVA (to those who dont know, thats a much bigger hospital) so we’re waiting on phone calls to be made and the ambulance to arrive to take us. Please pray for Justin…this is scary.

– He changes colors sometimes meaning he’s not getting enough oxygen. I just now went to burp him and his sats dropped down to 86.

– They are getting him on the stretcher and he was explaining things and i almost broke down. Im on the verge of tears….this is hard…im trying to hang in there as much as possible.

– At uva, his ent is on the way in. Plan is to at least admit him for the night…more details once dr early gets here.

– Justin is being admitted to peds here at UVA, he will have surgery later this afternoon.

– He has some anatomy issues in his throat…causes problems breathing…doing surgery sooner rather than later. As soon as his dr is out of the office today he’ll do the surgery.

– He’s taking it a lot easier than I am. They put him in PICU and put an iv in he hasnt cried a bit! Me on the other hand am a blubbering mess.

Sleeping at UVA

– Ok, 2 hours of sleep later….he’s allowed to eat until noon (although there are conflicting reports) and surgery might be this evening (different opinions on that too) the nurses here are amazing and last night one went on a mission to find a cot for me to sleep on instead of a chair. They are hoping to move him to a room with a bed for me later. He’s doing awesome, only cried when he was hungry!

– Just found out if they cant get him a room with a bed for me, i wont be able to stay the night with him i cried just thinking about it. The only reason they brought a cot in was cuz we had just gotten here…i hope they get him a room!!

– you know i’ll be sitting my happy butt in a chair beside his bed if need be and refuse to move! They said they’d call the ronald mcdonald house for me….im not leaving this hospital!

– They said i could either go to ronald mcdonald house or sleep in the family waiting room which is across the floor. I stayed up all last night, i’ll stay up again tonight if need be. He’s bf and refuses to take a bottle, i need to be with him.

–They said a few patients are leaving today so the likelyness of us getting a room are good.

– Im already on the brink of a emotional breakdown, my baby is sick, i havent had but 2-3hours of sleep, i miss my big kids im here alone dealing with it all and now they want to tell me i might not get to stay the night with him…thats a good way to push a momma over the edge!

– I’ll go off once they try to tell me to leave!

– Yes! Because he’s bf they cant kick me out tonight! They are looking for me a recliner to sleep in tonight. Insert sigh of relief!

– They are having a hard time getting blood from Justin i hate standing here hearing him cry. They did it earlier but it clotted and they have to redo it

– This is how close to the edge I am…chaplain come making her rounds while i was standing next to the door to avoid seeing Justin be poked, she simply asked me how I was doing and as I tried to answer her I just started crying.

– No, its just me. Jeff is home (over an hour away) taking care of the kids

– He’s hooked up to a heart monitor and he mentioned doing a echo on him.

– Surgery is put off for now. Dr wants more data because Justin’s heartrate drops way low(70) and there may be more to this than the original diagnosis.

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And thats as far as its gone, Im sure Jackie will be making a post about this shortly after everythings done with, and Ill try to keep this post updated.