Sensory Integration Disorder

Yep….that’s something that Jeffery has finally been diagnosed with. I knew from early on he had some sensory issues, but didn’t connect the issue with his behavior issues. His psychiatrist suggested having him evaluated to see if they found out anything we didn’t know and anything that might help. It did!

We were told he is hyper sensitive to touch…which means he thrives to touch anything and everything. This explains him playing with stuff in his desk at school instead of doing his work, rolling pencils on his desk, and picking on other students by touching them.

Something they found out I wasn’t aware of is that he is under sensitive to stimulation. An example is that she started turning him around to get him dizzy…most people would ask you to stop after a few turns when they got dizzy and she told me their eyes would “twitch” side to side…he wanted to keep going and going and even when she did stop him to look at his eyes, they didn’t “twitch” as much as most people. This explains his need to keep moving and getting out of his seat in class.

He's going to hate this picture when he starts to date...he's such a tough guy when he's awake, but when he's sleeping he's cuddling with Blue!

Now, most of Jeffery’s problems are in school. So I had his occupational therapist make up a list of suggestions so last Monday I went in and had a meeting with his teacher and the vice principal. I explained everything I’ve typed out here, and then we went over the list of suggestions…the entire time I was explaining his issues they kept eyeing the velcro that was in my hand…finally I explained that the velcro is to put under the top of his desk so when he gets the urge to touch something or someone, he can touch the velcro. We used the rough side and his teacher put it under his desk. Another suggestion from the OT was to put tape around his desk to show where he needs to keep his hands and stuff inside that area. We also discussed giving him “heavy” work….like carrying a heavy backpack, or chair pushups…just to get the energy out. I also asked them to make taking recess a last resort for punishment…with him being under sensitive to stimulation, he needs that time to run off some of his energy.  Something I need to find is a beach ball so we can deflate it mostly so it can be flat, for him to sit on in his chair…that way he can kind of move around in his seat and still get his work done (His OT did this during therapy and he concentrated better while sitting on something like that). Those are the main suggestions I give to them and both his teacher and vice principal seemed to be on board to help any way they can. His teacher also agreed to a nice email system so I know when to let him get his “earned” time on video games/daddy’s computer. She will email me when he has a bad day and no email means a good day.

Jeffery deep in thought. Karate is something we have found is good for him.

I am so glad my kids are in the school they are and have the teachers that they do! Jeffery’s teacher was willing to let him play with her iPod as a reward (implementing a positive reinforcement reward system) for getting so many stickers on a chart she made up. We have had all the above suggestions in place and I’ve only had one or 2 bad emails. I’m happy with how it’s going. I actually sent an email asking her how it was going and she said he’s having better days but he can still get better. Some of his issues aren’t sensory related, like today the bad email said he was yelling and very disrespectful. We are still working to find out if there is something more to him than the sensory integration disorder.

At home we have stuff to do with him as well, he gets “brushed”. Since he is hyper sensitive to touch I bought a special sensory brush that we use on his hands, arms, feet, legs and back and after we do the brushing his OT taught me joint compression to do on him. I’ve noticed after we do the brushing and joint compression, he seems so much more relaxed. Since the new stuff at school, I have noticed a little bit of a difference in him at home, I’m thinking we’re moving in the right direction.

I’m Thankful

I know Thanksgiving was the other week, but I’m thankful everyday. A lot has happened the past few weeks which is why my blog has been kind of slow with content. Meetings, family, and just enjoying everything around me.

First let’s start with the meetings, over the past few months I’ve had to answer a ton of questions about Jeffery and Jaylin. They were being reevaluated for special education services in school. When both of my kids went into the school system (Jeffery in 2008 and Jaylin in 2009) they were considered developmentally delayed. Jaylin’s assessment showed that she still needed some help with speech, but it was mostly because she is shy…the only service she requires is speech now, but they will still help her in other ways…she’s just technically not in special education anymore!!! I was so happy to hear that…the only reason they will still help her in other ways is because she is so shy and needs some more help to come out of her shell…she’s made HUGE progress since the start of the school year, we just don’t want that to slow down or regress. Everyone is so proud of her and expects her to continue to thrive. Jeffery’s meeting was just as exciting! He don’t require ANY services!!! This is a huge deal since he’s been getting speech since he was 19months old!!! His academic scores were in the SUPERIOR range for his age/grade!!!! I spoke with the special education director on how we can challenge Jeffery…since his behavior issues are due to him being bored with the 1st grade work. We’re going to see how he does with the challenge packets (when he finishes his classwork, he will get harder work…it’s something to motivate him to do his classwork since he LOVES school and challenges). I am also looking into the Gifted Student program they have. If those things don’t work…I will look into skipping him up a grade. I’m so proud of my big kids!!!!

Jaxon with his new mohawk on Thanksgiving...yes, he's got 2 spoons eating pumpkin pie!!!

Jaxon, the one child I thought would be the most jealous of Justin…is the sweetest to him! He is always coming in and patting him…or trying to make him stop crying….such as giving him a pacifier (even though he’s putting it in sideways lol) He’s grunting a lot more since he big kids went back to school but I think we’ve finally figured out how to get that down a bit…and so far it seems to help a little. He’s a work in progress ;) We’re also looking into the not so far future about him going into the school system. I am waiting on an application for Head Start so we can get the ball rolling on that and then we’ll get with the school so they can do their evaluations since his therapists can’t come after he turns 3 in May.  Even though he is going through the “Terrible 2′s” he has the sweetest personality…the only time the terrible part comes out is when we mess with his food and not give it to him in a timely manner lol.

Me and Justin

Justin, he’s almost 2 months old and the time is flying! We’ve been exclusively breastfeeding for over a month now and I feel such a bond with him because of it! I never knew breastfeeding would be this enjoyable…Jeff is liking it too. He says he don’t have to get up in the middle of the night to help, since there is nothing for him to do lol. All I do is get him out of his bassinet which is right beside my bed, feed him, change him and put him back in his bassinet….DONE! I never have to get out of bed! Everything I need (diapers and wipes) are right beside the bed. So far I haven’t experienced any of the bad things people have experienced while breastfeeding such as the cracked nipples, sore nipples or anything like that. He has taken to it so well, he knows where to go to eat! Jeff calls him a woodpecker because when he’s holding him on his shoulder, Justin will open his mouth and bob it back and forth on his shoulder lol. He is growing, he’s almost fitting into 0-3month clothes now. He’s growing, and I’m shrinking!!!! Breastfeeding is helping me lose weight and I’m loving it!!!!

Jeff and I have discussed it…and we’re  both SO happy I didn’t get my tubes tied. I think if I would have done that I would have went into a major depression. I’m enjoying Justin so much, I can’t imagine never doing it with another baby ever again. Speaking of Jeff…I’m also thankful for him! He works so much, just so I can stay at home with the kids. I really do love him for that!

He’s Not Being Challenged Enough

Jeffery has always been quick to pick up on things, you show him something one time and he knows it forever. This is proving to be a difficult thing for him in 1st grade. His teacher has told me that he plays with his pencil at his desk and

won’t concentrate.I know that teachers go over the same thing multiple times to make sure all the kids understand it, but for Jeffery it makes him bored. His spelling words are words he’s known how to spell since halfway through kindergarten! All the worksheets he’s brought home have only had a maximum of 2 wrong answers (99% of his sheets have no wrong answers at all) and his homework he’s done with in about 5-10minutes.
The reason I’m writing this is because I’m scared his teacher is going to try to say he’s ADD/ADHD because he is bored in class so often. Maybe I’m over-thinking this but I feel like if I go mention this to her she’s going to think I’m just a parent who thinks my child is better than everyone else…Jeff and I discussed this and he agrees if he was a teacher and a parent come to him saying what I feel about Jeffery then he would think I was just crazy. Yes, teachers do this everyday, for years and years and have seen plenty of students…but I know and have been told by his teachers last year that Jeffery isn’t quite like any other student they’ve seen. I want to nurture his brain, and keep it going strong…not have him bored and end up getting in trouble in class then he may not want to do the work and he’ll end up falling behind.

Any suggestions? Do you think I’m over-thinking this?

My Head Is Spinning

We’re just over a week away from adding baby #4 to the family and so much has been going on! I feel like I don’t even have time to breathe some days!

All 3 of the kids had their 6 month dental check-ups this month (all on different days). Jeffery cooperated no problem with the cleaning, Jaylin not so much…we ended up coming back and having a wonderful experience thanks to a great secretary who went above and beyond her job (she went back with Jaylin and let Jaylin sit on her lap), they also used Jaylin’s toothbrush and toothpaste so she would be more comfortable. I’m so glad we have a wonderful dentist office! Should be no surprise Jaxon let them do everything, including floss his little teeth! Unfortunatley for Jeffery, a few days after his check-up he complained his front teeth were hurting. I took him back and because he grinds his teeth at night, his front teeth were down to the nerve…they had to be pulled out (they are just baby teeth anyways). Jeffery flipped out the second they put the needle in his gums and wouldn’t let them close to him again, he ended up being referred to another dentist that could sedate him. The next week we were at the new dentist preparing for him to be sedated (they fit him in quick since I was so close to having the baby) That day deserves a post of it’s own because he was so funny! Long story short, he is now missing his top 2 teeth and then a few days later one of his front bottom teeth started wiggling!!!! He’s going to make the tooth fairy go broke!!!!

As I type this I am 35 weeks and 4 days pregnant! I’ve been in L & D a few times due to thinking my water was leaking, having contractions and the baby not moving like he should be. But all is good, they give me a shot to stop the contractions and he’s doing great! I have the amniocentesis scheduled for October 4th and the C-section is scheduled for October 6th! I’m so excited!! I can’t wait to meet this baby!

The last thing for me to write about is one that really has me scratching my head and confused. Jaylin had her 5 year checkup and while I expressed a little concern over her shyness and her getting upset so easily, I explained I’ve been saying it’s because Jaylin is a girl and she’s just sensitive…but there was something in me saying it’s a little more. The doctor noted that when she walked in she saw Jaylin bouncing up and down shaking her arms and hands…which was kind of random since just a few minutes before she was screaming her head off because she didn’t want to be there (even though she’s been to the doctor a million times…she still isn’t used to it) After we discussed it a bit, the doctor suggested taking Jaylin to Kluge (same place the boys were seen for their behavior/development issues). Her doctor thinks she may be on the Autism Spectrum (more specifically Asperger’s)  It don’t change anything, she’s already getting services at school, but this would kind of give us a idea of how to better help her if need be. I just never expected Jaylin to be diagnosed with anything…especially since Autism isn’t common in girls. It has me baffled how I can spend 3 years fighting to get the proper diagnosis and treatment for Jeffery yet Jaylin gets something without me even thinking there is something going on. It takes a couple months to get into Kluge for the first time so who knows when she’ll get seen there. Maybe it’s the hormones going on in me, but I’m upset we didn’t figure this out sooner…she’s showed some of the signs for awhile now but I just said it was her being a sensitive girl.

That’s been my month in a nutshell…and I’m sure I’m missing something. I feel like all I want to do is sleep and it’s still too early in the morning for my brain to be working lol.

On The Right Track (RE: Jeffery)

I’ve been meaning to update about Jeffery. Since being told we needed to find a psychiatrist for him to get the properdiagnosis and treatment for him I was kind of lost. A lot of people in this area don’t take his insurance. One day while talking to Jaxon’s case manager for his development (she used to be Jeffery’s case manager as well when he was in speech) she asked how Jeffery was doing and I explained what Kluge had said and she offered to talk to her boss for me…since there is another area of the place she works for and Jeffery could get help through there and see their psychiatrist. I of course agreed and a few days later her boss called me! He give me hope that Jeffery would qualify for services and told me to call the main number and give them all Jeffery’s information and they would have a meeting to see if he does qualify…the day OF the meeting, the boss called me and left a message and I wasn’t able to return his call right away but the next day the intake coordinator called me…they agreed Jeffery qualified for their services!!!! I was excited, we were getting the help he needed! I was getting help finding doctors and getting him on the right track and he was going to get to see the doctors he needed!

I took Jeffery the other week to meet the intake coordinator and we talked for almost 2 hours about Jeffery’s behavior and Jeffery even showed some of his OCD side while playing. The intake wrote a notes all over the paper he had  and said he would send information into Jeffery’s insurance to see if they would cover services and we would hear something in a few weeks…well just the other day I got a call from Jeffery’s CASE MANAGER!!!! His insurance approved services and Jeffery is going to DEFINITELY get the help he needs!!!! The case manager will be here this upcoming Wednesday to meet us and set up the plan.

I’m happy we’re finally on the right track to get him the help he needs! Just in time for school to start this month too.

Jaxon’s Progress

The past few weeks so much has happened with Jaxon he deserves his own post! This post is going to be a brag post…I’m such a happy and proud mommy I have to share, along with some ADORABLE pictures of the cutie himself :)

It started when Jaxon’s therapists (he has a developmental and a

Jaxon saying "cheese"

speech therapist) started introducing him to sign language. We started with “more” and he caught onto that when we sat with him and some cookies and give him a cookie every time he did the sign! He started walking around the house doing the sign, so we introduced a few more including “cookie”, “eat” and “drink” (some of the same signs we started Jeffery with when he was younger) Now it seems when we show him a new sign, he tries it right away and remembers it, like this week his speech therapist showed us the sign for “train” and he don’t have it perfect, but we can tell what he’s trying to do and we’re so proud of him!!! Of course whenever we do the sign we say the word so he’ll catch on. When his therapist was doing “train” she would say “choo choo” sometimes and while her and I were talking I heard him kind of mumbling “choo choo” we got excited and he did too!

He loves to be like his Sissy :)

Oh the mimicking he’s doing is awesome too!!! Not just with the signs, but with talking too!!! He loves to say what the big kids say. One night Daddy was reading to them and asked “Who likes ice cream?” when both the big kids said “ME!” Jaxon piped up and said “meeee!” Also, whenever I pull the phone or my camera out to take a picture, he goes “eeeeeeeee” like he’s saying cheese and gives the cutest little grin!!!! Today I was on the phone with Jeff and Jaylin had asked to talk to him, so Jaxon wanted to as well, he let out his little whiny scream and I asked him what he wanted so he pointed to his ear…telling me he wanted to talk to Daddy too!!! I put the phone up to his ear and he said “Hi!”

It’s amazing how much he’s learned in the past 2-3 weeks. Our main goal is to help him communicate his needs right now and it’s going GREAT!!! He’s pointing more too which helps a lot!

He’s still my laid back child, but his temper is starting to emerge! When he don’t get what he wants right away or is told “no” he has his little temper tantrums, stomping his feet, screaming, kicking things and not happy until he’s distracted…or in most cases…his food is done and cooled down (yes, he throws a tantrum when he sees us cooking his food and then putting it in the fridge to cool down faster)

Jeffery and Jaxon’s Updates

I’ve done way too much driving the past few weeks. Jeffery’s behavior doctor and Jaxon’s development doctor are both over at Kluge Children’s Rehabilitation Center in Charlottesville (an hour drive one way for us) Jeffery had his appointment last week and Jaxon has his today. Luckily Jeff was off today (if you count getting off at 6am, home at 7am and staying up lol) and was able to watch the big kids, which is more than I can say about last week! I had to get all 3 kids up and dressed then out the door before 5am so we could take Jeff to work (an hour drive in itself) then pick up a friend who was going with me to help with the kids who weren’t being seen. Jeffery’s appointment was at 8:30am…today Jaxon’s was at 9:30am (don’t these people know I’m not a morning person!?!? lol)

Jeffery with one of his karate instructors. Karate seems to be one thing we're doing right with dealing with his behavior.

Jeffery’s appointment was pretty short. His doctor come in and we discussed the problems he was having in school and his doctor said he’s pretty sure he’s bi-polar. I am trying to find a psychiatrist closer to home than in Charlottesville who takes his insurance and am currently working on the paperwork for one place. A psychiatrist is the only person who can officially diagnose Jeffery and if needed put him on medication. I did feel a sense of “we’re on the right track” and that hopefully Jeffery’s behavior will be on the path to getting better. The doctor said he no longer needs to see Jeffery and it’s all on the psychiatrist *shew*, no more long trips for him!

He's ALWAYS happy!!!

Jaxon’s appointment was quite long, because they wanted to do the Bayley testing on him as well as his development doctor see him. The Bayley testing wasn’t bad, Jaxon is such a laid back kid he didn’t care what they did to him lol. They put him in a chair that’s similar to a highchair and he went along with whatever they put in front of him, even with them taking things away. In the end his cognitive development is at a 18month level, his receptive speech is at a 15month level and his expressive speech is at a 13month level. The therapist who did the Bayley test and his doctor both agree that Jaxon may have a speech apraxia (Google it…I’m still researching it myself) I’ve texted Jaxon’s developmental therapist and she agrees with them and said we’ll discuss it when she comes next month. Pretty much (from what I got from Kluge today) it’s something that just requires plenty of speech therapy (which he’s already in) Everyone also agrees that Jaxon is NOT at risk for Autism. Jaxon also don’t need to go back over to Kluge unless something else comes up!

All in all, they were great visits! I feel like I’m doing all the right things for both boys and on the right track with Jeffery!

Time Seems to Slip Away

With every passing day, I feel my baby growing more and more out of being my baby. It’s bitter sweet. Yes, I’m happy he’s progressing and meeting milestones, meeting his IEP goals, his development is going awesome…but with every milestone accomplished, it’s a party of his babyness that becomes just a memory.

Today I saw his little personality pop out, one of Jeffery’s therapists was here and she brought Twister…Jaxon tried to

His personality just explodes! He's such a joy!

play with them and if I wouldn’t have had the headache I did, I would have taken a picture of him putting his hands on the different colors, running back and forth across the mat just to get a laugh out of us.

He follows his brother and sister around and idolizes them now. It’s so sweet, they can be sitting on the floor playing with cars or blocks and Jaxon will plop right down in the middle of them and play too. They let him, even play with him and encourage him to follow them.

Jaxon loves to drink out of "juice" boxes now

His newest thing of drinking out of a straw is AWESOME! We found the “juice box box” (hard box to hold juice boxes to keep from being squeezed) we used to use for the kids. It’s taking a bit for him to realize that he don’t have to tip it up, but he’s getting it. He’s becoming such a big boy! I saw him crawl today for the first time in a long time, he’s been walking everywhere to where seeing him crawl looked strange lol.

Jeffery, oh boy…where do I begin with him. I got him a Thomas the Train early reader book and he can read it! It’s gotten to where I love to buy him books and he’s ASKING US TO BUY HIM BOOKS!!!! That’s the best feeling in the world when my 6 year old asked us to buy him more books! He is also now a orange belt in karate and doing awesome! His report card is mostly great (the ONLY bad section is Social, where he is always getting in trouble) and I couldn’t be prouder of him!

My animal lover Jaylin :)

Jaylin, she’s something else! I talked to her on the phone the other day and I could understand every word of what she was saying…her speech is THAT MUCH BETTER!!! She can spell her name, and even write it semi legibly. She can spell Jeffery and Jaxon’s names as well. I register her for Kindergarten in a few weeks and I sign her up for her first year of T-ball this weekend.

MCHAT and Jaxon

I didn’t post about this before now because I have been busy researching the daylights out of this and speaking to his developmental therapist to find out what she thought. Jaxon had his 18month checkup on February 1st (yes, 2 months late…but I forgot he needed a 18month checkup) During the checkup the doctor wanted the MCHAT (Modified Checklist for Autism in Toddlers) done. Which is just 23 questions about your toddler between the ages of 16 and 30 months. You can see the test at https://www.m-chat.org/

Jaxon’s doctor says he “failed” the MCHAT and that he needed to get back to Kluge soon to get more testing. I was kind of in shock…I didn’t and still don’t believe Jaxon is Autistic. I tried to explain to his doctor that Jaxon goes in June for what’s called Bayley testing (for development) and that his doctor at Kluge has already said he’s pretty much ruled out Autism because Jaxon is so social. But his doctor pretty much ignored me. So as soon as I got out of the doctor office I texted Jaxon’s developmental therapist to see what she thought…she sees him 2 times a month which is more than that doctor sees him. She said she has noticed some signs of Autism, but nothing to concern her. She told me she would bring a book she has the next time she come. That time was today. She also printed out the MCHAT and we sat and went over it together, I told her how I answered and she agreed with everything. Except when she went to score it, she looked at a sheet that shows what the answers should be and some of them SHOULD be no. The doctor just counted all the “No’s” on it and said “Ok, it’s 3 no’s. This says 3 or more is at risk”. The therapist says by the MCHAT he is NOT at risk…but that yea, she’s seen some characteristics of Autism in him but we also agreed that all of my kids have some sort of characteristic of Autism.

While we (Jaxon’s therapist and myself) think that it’s awesome his doctor is on the ball to do this testing. I think he needs to be educated on how to score it so he don’t make some parent panic thinking their child is at risk for Autsim when they really aren’t. Not all parents take the time to research things before going further into testing…some just listen to doctors and follow what they say. I encourage anyone who has a toddler and their doctor does the MCHAT, please pay attention to what your answers are, how they score it and ask questions if you think something isn’t right. At https://www.m-chat.org/ you can do the test yourself, and please if you do this and it pops up your child is at risk…talk to your doctor about it. This test isn’t saying definite yes or no that your child is Autistic, it’s just saying if there is a risk or not.

I felt good today after his therapy session. She told me I was doing everything right, he’s already in therapy for his developmental delays and I’m on top of everything with him (and the other kids)

I’m Going To Call It

Jaxon is no longer a baby (well, he’ll always be MY baby), but I think it’s time to upgrade him to Toddler! This is how he gets around about 98% of the time now.

Forgive the quality, it was taken with my Blackberry which is horrible at taking pictures.

He’s so cute as he still keeps his hands by his head as he’s walking, he can fall and get right back up and keep going. He can even make turns and turn completely around without falling now. Oh, and he can climb…he loves to climb on things! He scares the daylights out of me, but he is adventurous!

This makes me happy and sad at the same time, I’m happy he is progressing, but he does a lot more of this now…

Walking away...my heart isn't ready for him to be so independent!